Everyone who stays at The Children’s Inn at NIH is making their way through a unique medical journey. Even within the same family, dealing with siblings who share a diagnosis, the journeys can take wildly divergent paths.

Take, for example, Lucy and Landon, siblings who arrived at The Inn in early March 2024. For seven-year-old Lucy, that arrival culminated in two years of searching for answers. For 12-year-old Landon, it opened up a path he hadn’t even realized he was traveling. Now, several months later, both are well on their way to recovery and a resumption of their active childhoods in North Carolina.

Lucy is a friendly and articulate girl who loves school, especially since it means seeing her friends. In 2022, when she was only five, Lucy began developing spots all over her legs. They looked like mosquito bites, and her parents, Mary and Darrell, thought for a while that was all they were. But the spots persisted, and later that year, she had a huge spot on her hand that showed no signs of improving.   READ MORE...